Thanks for the Invite Though

Recently another one of those sad birthday party posts popped up on one of my social media news feeds. The ones where a big, fun, and often elaborate party was planned for a child and then crickets. No one shows. It’s crushing to hear about these situations for both the child and for the parent or person who put all the time, money, and effort into the day, only to have it backfire. What was supposed to be a happy celebration has turned into a source of disappointment and sadness.

On the post there were tons of comments basically saying different versions of the following responses…

I still remember when no one showed to my party as a kid
It happened to me and my child and it’s heartbreaking
This always happened to me, it hurts
Happened to me as a kid and to this day I hate my birthday
I see this happening a lot
I’m planning a party now and stressed that no one will show

And also comments like this…

This is why we make a point to go to all the parties we are invited to
Do unto others, if you want people do come to yours, go to theirs
I insist we go to kids’ birthday parties whenever we are invited
It’s not that hard, just show up

And then there were many comments along the lines of…
This is why we don’t throw parties.

So, as someone who will likely not show to most of these parties, I am going to give the party perspective from a food allergy parent.

My kid and I are not skipping your party because we are fun haters. Birthday parties include a large focus on food and food has the power to kill people with food allergies. We can’t comfortably and safety walk into a chaotic birthday celebration with a million kids running around with food everywhere. Typically, the parents or party hosts are acquaintances or casual friends at best and unless they are also a food allergy family, there is naivety to what goes into providing a safe or low-risk environment.

Then there’s the fact that I don’t want to insert myself into an acquaintance’s party planning. If I were to consider bringing my kid to the party, I would have a load of questions about the environment he would be in. I would ask for the overall menu. I would ask for a list of the brands being used and to be able to see the labels of the products so I could determine if the food being served would be safe for him to consume.

And then, even with that info I also don’t know this person’s food prep cleanliness. Cross contamination and cross contact are some of the biggest fears as it is not intentional, and people don’t understand how easily allergens can spread between food items.

For me, asking for all that information is mentally exhausting, time consuming and feels intrusive. When my close family and friends have parties, this is the process we go through. I typically get a text or email of what type of food will be served and I respond with the safe options for ingredients with a reminder of making sure the food prep surface and utensils used are clean and sanitized. However, with more casual acquaintances, friends, and family I simply don’t have the trust, time or energy.

If, by chance, the party is at a public location where the kids eat and play, I may be more comfortable participating. If that’s the case I will be researching and calling the restaurant or business directly to determine if I feel the environment falls within my comfort zone. And even then, with a peanut allergy the odds are that the cake and ice cream won’t be safe as there are extreme cross contamination and cross contact risks with these types of foods.

How do you tell a young child they can’t have cake and ice cream like the other kids at the party? Either they are excluded, and sadness and a scene ensue, or I must take my time to bake a similar dessert and make a batch of my homemade ice cream so he can participate. But even this could backfire and draw negative attention to the allergy and being different.

There are also the conversations beforehand with my child about the party and staying safe. The over monitoring of the environment and making sure he doesn’t just grab unsafe food purposefully or accidentally. Its stressful, anxiety inducing, and exhausting. I am hoping when my kids get older it will get better. Easier. But when they are so young, they don’t know how to take all the necessary precautions all on their own. They are still learning and so am I.

So, to those who say its not that hard to just show up…yeah, for some it is. And it sucks. It sucks that I can’t just avoid a party because I simply don’t feel like going like a normal person gets to. I avoid a party because depending on the situation it could be dangerous. Because it is extra effort that I don’t always have time for. Because it can be absolutely exhausting.

So, please plan your party and thank you for the invite. Just remember that when people don’t come there is often more to the story. But don’t worry, I will RSVP properly because I’m not that type of awful.

Dear Mama

Mother’s Day kicked off Food Allergy Awareness Week (May 12, 2019-May 18, 2019) and it is also the third anniversary of when my family entered the food allergy world.

I’m going to assume many of you have some sort of photo app that sends you alerts with the pictures you took in previous years. Every day I get an alert that says something like This Day on May 13 and up pops all the May 13th pics from the past few years. Usually getting that notification is one of my favorite parts of the day. Especially when there is a video and I can hear Marshall and Manning’s little baby noises and voices that are ever changing. Well, this weekend I got the pictures shown above. This is Marshall a few hours after his anaphylactic reaction to peanut at 15-months old.

I’m not going to rehash the events leading up to these pictures, as you can check out my first blog post Now This is a Story if you haven’t done so yet. Let me tell you though, coming off that Mother’s Day weekend into a terrifying event, I was certainly questioning my ability to be a mom. I was absolutely lost.

When I look at those pictures now, I still don’t want to believe that a peanut has that kind of power. That any food has that power. It’s such a weird, messed up concept to grasp. Food should not have the power to do harm. But it does. And it really fucking sucks. And food allergies is a topic that needs attention, research, understanding, empathy and awareness. Plain and simple.

Because it is something without a solid management plan, I question myself constantly if I am doing what is right regarding my kids’ allergies. Am I too conservative with what I feed them? Am I too lenient? Am I the stereotypical helicopter mom I said I would never be? Am I educating them enough to keep them safe without creating anxiety and fear? Am I sending them to the school I feel they will be most safe? Am I communicating their needs properly? Will I hesitate if I need to use the Epi? Will I sacrifice what I feel is right in an effort not to inconvenience others? All the never-ending questions…

These worries and wonders used to go through my head literally almost 24/7. I was obsessed and scared and couldn’t escape it. It wreaked havoc on my mental and physical health. The fear and worry was crippling some days. The worries are still there, don’t get me wrong, but I am trying to stop questioning myself so frequently and instead confidently own this reality. Like any other mom, I just try to keep my kids safe and happy the best I know how. And I’m trying not to apologize for being an inconvenience or a burden because that’s what I feel like a lot of the time.

So, while I prefer my kids don’t repeat a lot of what 2Pac says, I hope this will ring true:

When I was sick as a little kid
To keep me happy there’s no limit to the things you did
And all my childhood memories
Are full of all the sweet things you did for me
And even though I act crazy
I gotta thank the Lord that you made me
There are no words that can express how I feel
You never kept a secret, always stayed real
And I appreciate, how you raised me
And all the extra love that you gave me*

In closing out Mother’s Day this year…

Dear Fellow Food Allergy Mamas,

I feel your fears. I feel your frustrations.

I see your kids as more than The Food Allergy Kid. I see all you did in preparation to simply experience life events such as going to a movie theater, a playground or traveling on an airplane. I see your need for inclusivity. I see you spending more on wet wipes in your lifetime than you ever thought possible.

I understand why you avoid situations and environments that are too risky. I understand the anxiety around food focused gatherings and celebrations, which, let’s face it, are basically all the gatherings and celebrations. I understand the guilt you feel like you did something to cause this. I understand the feeling of wanting to slap the person in the grocery line next to you buying the jar of peanut butter that you can’t. Or maybe that’s just me on a bad day.

And just remember, because of this your children are likely becoming more accepting and understanding of others. Because of this you can appreciate things in life many take for granted. Because of this you are more aware of the food you are putting into your and your children’s bodies. Because of this, you will get the chance to see some people’s true colors.

You’re doing great mama. You got this. I got this. We got this.

 

*I own no rights to the lyrics or music or anything to 2Pac’s Dear Mama. I just frequently listen to him and other 90’s and early 2000’s rappers because it is the best genre of music. Hands down.

Blog About the Blog

Well, hey there! It’s been a minute, but life has happened the last couple of months. However, you are about to be blessed with a few rapid-fire blog posts.  Why? Because Food Allergy Awareness Week is upon us. Here’s a few links if you want to read a little bit more about it:

https://www.foodallergy.org/take-action/food-allergy-awareness-week

https://www.kidswithfoodallergies.org/page/food-allergy-awareness-week-month.aspx

https://www.foodallergyawareness.org/education/food-allergy-awareness-initiatives/food-allergy-awareness-week-month/

So, from May 12-May 18, 2019 I am going to put out multiple posts in hopes to contribute to the awareness that is desperately needed. And since you have a couple of weeks before I hit you all up, this would be a great time to catch up on my story on how I entered the food allergy world along with the other posts I’ve written. And I want to remind my lovely readers of a few things…

I am not an expert. I am a mom of two kids with severe peanut allergies. I’ve seen an anaphylactic reaction. It was terrifying. And I live with the reality that food has the power to kill my children. So, nope, not an expert on paper or by education or profession, but I live this life every day.

The purpose of my blog is not to be purely informational. As in, I’m not posting literature from peer reviewed articles or flooding my posts with statistics. I might throw a random stat or number in there once in a while, but that is not the purpose here.

So, what is the purpose?

When looking up information about food allergies what I found were a combination treatment studies, cooking with food allergies, traveling with food allergies, food allergy safety and statistics. A bunch of absolutely wonderful and necessary information, but what I really had a hard time finding was the daily navigation of everyday life. And not presented in a purely factual way.

I want to put real life situations out there to try and provide support to those going through it and hopefully help invoke an “aha moment” to those who don’t quite know how to relate. The concept of food having such a power is so foreign and difficult to grasp for most people so I am doing my best to try and get people to get it. And I will likely use sarcasm and craziness along the way.

So welcome, if you are new to my page and thanks for sticking around if you’ve been here from the start.